Hope when Living with Type 1 Diabtes - a different perspective

Hope when Living with Type 1 Diabetes

Hope. It is so important when living with Type 1 Diabetes. Hope for a cure. Hope for advances in technology. Hope to make it through each day. Hope simply to make it through the night. We almost lost our T1 son one night so we are keenly aware of that hope. That hope is something you can never take for granted when you have a person with diabetes in the family. 

Yet, when I asked my college age son what he hoped for with Type 1 Diabetes, I truly expected he would say ”Hope for a Cure!” Instead I was blown away by his answer…

No, he was not holding out hope for a cure.

Tristan Edgar is living now with Type 1 Diabetes

 

College student,
Tristan Edgar
has been
living with
Type 1 Diabetes
since age 12.

Shocked, I asked “Why???”

His answer was simply, “I have Type 1 Diabetes and I am fine with that. It’s who I am.”

Of course, my first reaction was to be sad. Diagnosed at age 12, he has lived with this chronic condition through his teen years and into adulthood. No, it has not been easy. We have had some really close calls. Yet, his response was that he would not change having Type 1.

When a family is first hit with a T1D diagnosis, it is pretty common for them to immediately start hoping for a cure. Why is it taking so long??? Families dive into fundraising.  They focus on reviewing the latest research and following the newest diabetes management tools. We all need hope. We just can’t imagine living without hope.

“Hope is essential to surviving with a Type 1 diabetes diagnosis.”

Personally, I do have hope. We continue to support any and all efforts despite my son’s “reality based” attitude. We won’t give up on hope because I am incredibly optimistic with the strides that have been made.

I WILL have hope for him.

Saddened initially by his answer, I am now elated regarding his incredible attitude.

Nope, my son is not holding out hope for a cure.

In reality, he is not waiting to start his life when a cure is found.

He is living NOWwith or without diabetes. It is who he is!

And like many with people with diabetes, he is not going to let it slow him down.

Could it be by some miracle, I have raised a well-balanced young adult???

Living with Type 1 Diabetes is just who he is, and he would not change that. So yes, I will rejoice that he lives his life without letting it stop him.

I should be honest though…we, as a family, will continue to hope for a cure. We know that with his diagnosis, Type 1 has invited itself into our family’s future. We can’t give up because there is that “chance” that it could impact his children someday. That’s what motivates me as his mom! I will do this for HIS children.

We have had many T1D Teachable moments raising our son. Those are situations that initially look like diabetes “failures” but ultimately turn out to be great learning opportunities.  Well, this one was mine

He is happy therefore I am happy.

What more could a mom hope for?

Written by Anne Imber
published on 10/17/2017 on www.Type1ToGo.com 

Anne Imber is the mom to a Type 1 Diabetic son diagnosed in 2009. As the Founder of Type 1 To Go Teen, Anne shares her experiences with other Type 1 families regarding many of the non-medical issues that Type 1 Diabetic Teens face. The website www.Type1ToGo.com provides support materials from her presentations. Anne is also the Co-Founder of Cy Fair Type One Connection, a T1 School Advocacy & Support Group for one of the largest school districts in Texas.

Tristan Edgar has agreed to let his mom share their stories about raising a Type 1 Diabetic Teen. The family hopes their experiences can benefit other families living with diabetes.

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Related Pages to this Post

Our family supports JDRF by supporting walk team members and presenting JDRF fundraising walks at local elementary schools. Tristan's dad, Ed Edgar,  will be running the Chevron Houston Marathon on the JDRF team!

We place our Hope in JDRF!
Juvenile Diabetes Research Foundation 

 

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